Let me explain my pain. Many of my leg and hip muscles have tightened so badly (from my pain) that sitting for long periods hurts. My vestibule - the vaginal opening - was so sensitive that I couldn't wear pants back when I was diagnosed correctly in 2008. My specialist, Dr. Richard Marvel in Baltimore, diagnosed me because I jumped off of a table in pain when he touched my vestibule with a Q-tip. Obviously, I couldn't have sex without pain, either.
I had surgery five years ago to remove some of the most painful tissue. In August my pain flared up again, badly, and I've been in physical therapy since October 2012. Right now I have an awesome team of doctors and physical therapists, including Dr. Lara Burrows and Amy Senn at Summa Healthcare in Akron. They are doing everything they can to help - with medicine, physical therapy and mental therapy that have helped me to feel better and cope with the pain when it flares up. I'll be attending a medical conference for patients with my condition (and similar conditions) in April. I plan on telling you all more about this because if those of us with these conditions don't speak up there won't be money invested for research to help us find solutions.
The conference I will be attending is the Alliance for Pelvic Pain.
Here are a few organizations with helpful information, The National Vulvodynia Association and the International Pelvic Pain Society.
You are welcome to ask me questions, though I am not a doctor. And if you go to a doctor and feel as though your concerns were not addressed you can look up doctors on the sites listed above. Keep persisting until you find a doctor that listens to you.
If me speaking out about this helps one person get help for their issues, it was well worth it.
And I will continue to post more art and jewelry.